Syracuse (WSYR-TV) -- Syracuse’s Palace Theater was overflowing with support Wednesday night as a group of young professionals held a fundraiser for a baby boy Central New Yorkers have grown to love.
Baby Easton Friedel of Weedsport suffers from Epidermolysis Bullosa
-- or EB. Children who suffer from it are often called “Butterfly babies.” The condition leaves their skin as fragile as the tissue of a butterfly's wings.
“We all love him and he’s a strong little guy and we just hope that we can do the best we can for him tonight," said Valued Industry Partners Co-Founder Jonathan Grutka.
Valued Industry Partners is the group of young professionals that hosted the fundraiser.
Businesses from across the region donated to the cause. A silent auction was held to help raise funds for baby Easton's medical expenses.
Josall Roofing donated four SU basketball tickets.
“I’d never heard of the disease before, but it’s incredible that they have no cure for it and that baby has to live with that for the rest of his life,” Joseph Chiarizia of Josall Roofing said.
Money wasn’t all you could give either. Words of encouragement will be sent to the family.
“I’m praying for him and my family’s praying for him and that we have a lot of hope and faith in him,” said 10-year-old Isabella Valenti.
“It just feels so good you know, and when you can have such a big impact and the whole community comes together so quickly surrounding one family, one little infant, one disease, as a whole, it's pretty amazing,” Grutka said.
Wednesday night's fundraiser raised more than $8,500 for the family.
If you'd like to make a monetary donation to the family via PayPal, search for the email address: email@example.com. You can make a donation there.
You can also follow baby Easton’s progress on Facebook